A Crooksville family dealing with the day-to-day struggles of Mitochondrial Disease got the surprise of a lifetime.
"Special Spaces actually started about eight years ago in Knoxville, Tennessee, which is where I’m from," said Faith Glazer, "That’s where we lived when my daughter was diagnosed."
"She was diagnosed with Medullar Blastoma, at 3 years and 3 months. She had two brain tumors," she added. "The summer of 2006, Special Spaces came and did her bedroom."
Fast forward to the present; Hope is 6 years cancer free, and Faith Glazer is the President of Special Spaces in Central Ohio.
"I needed to do something to give back," said Glazer. "So this is my way of just giving back for all the blessings and it’s just unbelievable."
Sunday, volunteers came out to give 12-year-old Baylee Thompson that same opportunity.
"It was just fitting for us, the date, because this ended up being the end of "Mito Awareness Week," said Baylee’s Mother, Jody, who said she was excited when she found out that her daughter, who suffers from Mitochondrial Disease, was selected for the room redecoration.
"Your mitochondria is where energy is made and stored, so she had none," Thompson explained. "So as she gets up in the mornings she’s tired, and her body just gives out."
"She’s just so happy all the time, even though some things are really hard for her," added Baylee’s sister, Jade Thompson.
Together, Jody Thompson and Glazer discussed how to make Baylee’s room work to fit her special needs.
"We discussed sensory walls," said Thompson. "Baylee loves touching. Her touch and her sight are just impeccable."
"I’ve done a lot of research on the internet, talked to some friends of mine that work with special needs kids to get my ideas," added Glazer.
Family and friends anxiously waited outside of the Thompson residence as volunteers put the finishing touches on Baylee’s room. After hours of meticulous work, it was time for the big reveal, which featured an extra surprise not known to the family.
"They know we’re doing a sensory room for Baylee, but Jade has no idea that she’s getting a room makeover too," said Glazer. "A lot of times, they don’t show it, but they kind of feel left out, when you’re having to devote so much of your time to another child in the family."
"I’m amazed! It’s so awesome!" said Jade Thompson, after seeing her brand new 60’s themed bedroom. "It’s better then I think you could have thought of what it was going to be."
"I’m overwhelmed. I think for the first time in my life, I am totally speechless. I just can’t even say anything," said Jody Thompson. "This is just truly a gift of love."
"I’m just glad they like it," said a teary-eyed Glazer. "I’m just happy they like it, this is worth it all."