Sebastian’s Journey Poker Run

by Mackenzie Stasko on May 24, 2013 at 6:51 am

16-month-old Sebastian was diagnosed with down syndrome, a heart defect, a bowel blockage and Tracheomalacia. As he grows, so do his medical bills. His family is holding a poker run fundraiser to help offset the cost of his medical bills.

"It starts at Fat Boy’s in Avondale and it ends at Fat Boy’s. First bike goes out at 11:00 a.m., last one at 1:00 p.m. We’re going to have a band and we’re going to have food and we’re going to have a silent auction and a 50/50, and it’s just a lot of great people getting together and celebrating Sebastian," said Shannon Longstreath, Sebastian’s mom.

Sebastian’s formula cost’s the Longstreath family about $30 a day. He also needs occupational and physical therapy, and will eventually need an $8,000 chair.

"His cares are extremely expensive. He’s a very medically fragile child and he needs a lot of things that aren’t covered or could be covered but you have to get on a waiver to get it and that could take forever."

If you want to make donations, the family has an account set up at North Valley Bank under ‘Sebastian’s Journey.’ They also have a Facebook page where you can read about updates on his journey.