A local woman wants to raise awareness about Neuromuscular Disease.
Kim Mason is currently living with this disease. Hereditary Inclusion Body Myopathy is very rare, affecting just over a million people in the whole world. The disease causes ones muscles to lose their strength and disables you completely within 10 to 15 years of diagnosis. Mason said one of her struggles is giving up her independence. Kim said she is able to handle this though her support group of faith, family and friends. She also takes part in volunteer work and is involvedt in Mary Kay.
Mason said, "It’s all my volunteer work…I’m telling you. Well for one, I’ve been a volunteer at Fairfield Medical Center in Lancaster, I’ve been there now for over 10 years….I’ve also been with the look good feel better program for the women that have been going through cancer. I got involved with Woman’s Life."
Kim has received awards for her volunteering. Mason and her husband Jim. Want to invite the public to their home for a fundraising event called Angels In Bloom. It is through Woman’s Life Chapter. And benefits the Advancement of Research for Myopathies. You can pick a bouquet of dahlias, enjoy ice cream, music and other refreshments. Mason says raising awareness is incredibly important to them.
Mason says, "Thats why this is so important to us. A person might be sitting out there thinking, you know I dont know if I have a disease I think I have. I want them to be able to do a DNA testing…See if they might have HIBM. There’s probably a lot of them out there that dont know they have it."
The event willl be held Saturday, August 16 from 12PM to 4PM. For more information, you can contact Kim at the following email address: email@example.com