Jody Thompson's 13-year-old daughter Baylee suffers from the disease, a disease she says affects the Mitochondria, which stores 90% of the body's energy. Thompson said Baylee has never walked or talked and for the past 13 years. Thompson has been active in planning fundraisers and trying to make the public aware of the disease as much as possible.
"This disease is not rare, it's just misdiagnosed or undiagnosed at the time," said Thompson. "There is no known cure as of yet and that's what we strive for by our fundraising efforts and it's just imperative that we get the word out about this disease because literally, this disease kills more children than childhood cancers."
In one of Thompson's many efforts to raise awareness about disease, she contacted Crooksville High School's volleyball and football teams to host a "Mito Night." This Thursday, Baylee will be taken out on the court and at Friday night's football game against New Lexington. Booths will also be set up with information about the disease.
"We also contacted Zanesville High School who plays home this week, Maysville High School; that's my old alma mater and they're also gonna run public service announcements of Mito awareness over their loud speakers as well. And then later on in October, Philo has agreed to do it. So, I'm very excited. I mean, we've gotten some more schools around the area to help us out on that and I just graciously thank each and every one of them."
For more information about the disease or to read updates about Baylee, you can go online to www.umdf.org or search "Bet On Baylee" on Facebook.